Tuesday, September 25, 2012

Who Wants to Hear a Good Report?

My kidney appointment went really well yesterday. I have a lot of updates so will do so in chunks:

  • My glomerular filtration rate (GFR) has improved and my kidneys are functioning better than they were six months ago! I went from a GFR of 59 to a 78 -- meaning that I'm now at Stage 2 of chronic kidney disease instead of Stage 3. This change is due to a reduction in my creatinine level; there's less chemical waste in my blood.
  • My diastolic blood pressure (resting heart rate) is still high. The systolic number (pressure when the heart is beating) is good.
  • I still have high levels of protein and blood in my urine. This, coupled with the high diastolic blood pressure, made my doctor decide to increase my blood pressure med; I'm now at the max dosage. I have another urine test in four weeks to reassess and see if this change is working.
  • There's some talk about doing a second biopsy if the proteinuria cannot be controlled. But we're in wait-and-see mode.
  • My file was changed to officially list my diagnosis as: IgA nephropathy (chronic). This was a change from the more generic diagnosis of mesangial proliferative glomerulonephritis. This may not seem like a big deal, but for me it's important. I like specificity.
  • I have (ugh!) gained 25 pounds since being diagnosed with kidney disease. (Did I say "ugh" yet?)
  • Quote of the day: "You put me to shame." -- my doctor, when I told her that I ran a 5K two weeks ago. :) 

All in all, not a bad visit!


  1. Wow! There's a lot to be positive about in that report!
    Thanks for the update! And keep on running.

    Love, your running buddy

  2. Some great news! So glad to hear it. Love you!

  3. Nice job! Your hard work is producing results. Keep up the good work - know it is tough, but you can do it! Miss you!